James | Sitter Session | Charlotte, NC Newborn and Baby Photographer | Krista Gantt Photography
James! The third baby for this precious family. This is one of my favorite families to work with… Emily always trusts my vision for each session and comes prepared for a fun time together. If you know me, I like to keep backdrops clean and simple to keep the focus on the baby.
If you’re looking for something colorful and busy… I am not your girl! I will happily refer you elsewhere to make sure you get the images you’re looking for! You can count on me to keep it classic and simple, but still unique enough to experience a custom portrait session.
Jaycari | 28 Week Preemie | NICU Portraits | Charlotte, North Carolina | Krista Gantt Photograph
“On August 17, 2020, we found out we were expecting another sweet baby boy on 4/26/21. We were thrilled to be expanding our family and promoting our 10 year old son to a big brother. Throughout my pregnancy, I was labeled to be a high risk pregnancy considering I would be giving birth at the age of 35. However, with each exam I took, I passed them with flying colors. As each month passed by, I impatiently waited to feel our baby move for our son to experience feeling his baby brother. I only felt butterflies here and there the entire time which seemed odd. As I got closer to the third trimester, I felt like something was off since I was still not feeling my baby move as much as I should be and my belly looked smaller than I expected. As I went to each check up, I kept being told that everything was progressing as it should, so I told myself that these thoughts I was having were all in my head.
A little after 7 months, I decided to get checked by my OBGYN to be certain nothing was wrong as by now I should be feeling obvious kicks. I was seen immediately and failed the stress test at the office. I went from thinking it was going to be a quick confirmation that it was all in my head, to being sent to labor and delivery for further analysis. Once all the tests were complete, we were told the scariest thing any parent could hear. Due to a placental deficiency, our baby was not getting the necessary fluids and nutrients he needed. He was at the 3rd percentile growth rate and had a 80-90% survival rate. Although he was 28 weeks and 3 days, he was measuring around 26 weeks and only weighing 1 lb and 5 ounces. All I could think of at the moment was “did I do something wrong?” “was this my fault?”. The doctor reassured me that this was internal and not anything I could have controlled.
We delivered our baby boy the next day via C-Section and immediately began our NICU Journey. No one could have ever prepared us for what was to come. You end up having so many emotions and thoughts while you are trying to transition to your new reality. You feel robbed from your last trimester, no more short hospital stay and leaving with your baby, no more maternity pictures, no more baby shower, not being able to hear your baby’s first cry due to needing an oxygen tube, not being able to touch or hold your baby due to how fragile a preemie can be and needing to be in an incubator, not being able to kiss your baby from having to wear a mask and not being able to see your baby’s face from all the tubes. You just feel overwhelmed, scared, and end up in complete shock.
During our stay, everything sounded terrifying and your baby goes through the toughest challenges with delays in lung growth, heart PDAs, nutrition goals for proper weight gain, ensuring there are no brain bleeds, their stomach is digesting as it should, their vision is maturing as it should, getting hernia surgeries, and learning to bottle feed.
After 104 long days in the NICU, our son now weighs 6 lbs 11.9 ounces, has learned to breath without a ventilator and only needs low flow oxygen, his stomach now digests food as it should, his heart PDA has closed, he began bottle feeding, has had his hernia surgery and his eyes are very close to maturing. We are so proud of our son Jaycari Jace Jordan for being the biggest warrior! He is the strongest tiny human I know and he continues to amaze us each day. We are grateful for all the outstanding nurses and specialists that have made our sons stay easier and look forward to finally hearing that special word - “Discharge”. To all the preemie moms and dads out there, you will get through this! Trust your little warrior, they are stronger than we could have ever imagined. “
Declan | 32 Week Preemie | NICU Portraits | Charlotte, North Carolina | Krista Gantt Photograph
“We were very excited to find out we were expecting! Our pregnancy was pretty smooth, just your normal aches and pains, but that all changed at our 31 week appointment. I had elevated blood pressure that day and by that night my blood pressure was dangerously high. I was admitted that night and was told I would be staying until we had our baby. On Easter we kept failing our NST and the MFM and OBGYN agreed it was time for baby to make his entrance. We tried to labor naturally but his little heart didn’t like that so I was taken for an emergency c-section. Our little man come out crying which was the most beautiful thing, he was rushed out right away to make sure everything was okay. Our NICU stay has not been easy but it is such a blessing to see our little man growing and meeting all these special milestones right in front of our eyes. Moms and Dads enjoy all your snuggles and don’t be afraid of all the wires and tubes. Let your emotions out it’s okay.”
Jonathan | 27 Week Preemie | NICU Portraits | Charlotte, North Carolina | Krista Gantt Photograph
I managed to meet Jonathan when I was photographing other families in the NICU, and it happened to be his discharge day! He got to go home to be with his family and is now officially a NICU graduate! GO JONATHAN!
Mason | 26 Week Preemie | NICU Portraits | Charlotte, North Carolina | Krista Gantt Photograph
“My husband and I have an 8 year old daughter who longed to be a big sister and we knew our hearts were ready for another child. We were overjoyed when we learned our family would be growing, and the excitement continued when we learned we were having a boy. We planned showers and the nursery and was determined to make everything PERFECT!
Until at 25 weeks things became not so perfect, as my body went into labor. We rushed to the hospital and learned we would soon be having our preemie baby. The neonatologist came to talk to us about what to expect, and what our stay looked like, and survival odds. It was overwhelming and terrifying but that conversation really prepared us for our NICU journey.
Mason was born via c-section at exactly 26 weeks weighing 1 pound 11.2 ounces and came out ready to fight! At 4 days old he became gravely ill, and we feared we were going to lose our baby, but God was not done with Mason and Mason was not done fighting. It was a hard fight for a few days but we made it through it with a lot of prayers and by the Grace of God. His sickness did cause a grade 4 brain bleed and hydrocephalus which has required two surgeries during our stay. He has overcome so many obstacles and continues to amaze us with his strength.
We have been in the NICU for 80 days, currently just transitioned to special care, learning how to feed and we will soon be heading home. My advice for any parent that is having to walk this NICU journey is to first realize it is a long road, BUT this is only temporary.
There are scary times, frustrating times, and joyous times. Take them all in. Every small victory, celebrate it! Your firsts with your baby will be a lot different than other moms with newborns. You will celebrate a day without bradycardias, no more PICC line, less respiratory support, or a good head ultrasound. No, it’s not the normal excitement you plan for as a mom, but it’s your new normal and it will be just as exciting as hearing your baby coo for the first time!
Embrace the rollercoaster. It won’t be long until you are home with your little miracle and this fight and this journey will remind you of yours and your baby’s strength!”
Lennox | 34 Week Preemie | NICU Portraits | Charlotte, North Carolina | Krista Gantt Photograph
“We first learned that we were expecting Lennox in October 2020. Excited doesn’t even describe the feeling! He was due June 22, 2021 but because of decreased fetal movement the doctors made the call to induce me at 34 weeks. Thank goodness they did because nine hours into my induction my placenta detached from the uterine wall and I was rushed to the OR for an emergency c-section. The peace of mind I have now knowing that Lennox is doing so well and coming home soon makes the whole experience one to remember!”
James | In-home Lifestyle Newborn Session | Charlotte, North Carolina | Krista Gantt Photography
You all might remember Erika from her stunning indoor maternity photos. She and her husband are now parents to baby boy James! Upon arriving at her home for the session I was awestruck by the decor—Erika knows a thing or two about design. This made my job so easy! Lifestyle photographs can be much more diverse when every room in the house is styled and clutter-free. With that being said, please don’t feel any pressure to make your home just so before I come—the transition to motherhood can be trying! This mama just has a special gift, and I was able to capture that in these photos. All I really need is a space with one good window for lighting to get the best photographs of your and your new addition!
More beautiful than their stunning home is this family, just full of joy. Even baby James gave me some sweet smiles to capture. With mom and dad in neutrals and denim and James swaddled in neutral, textured blankets, I was able to really capture some of their first, special family moments without any distractions.
There is something so special about the home to which you bring your brand new little baby, and as much as I enjoy studio sessions, I really love capturing families in their element. What do you prefer—studio or lifestyle session?
Three Ways to Celebrate Valentine's Day with a Toddler | Charlotte, North Carolina | Krista Gantt Photography
Toddlers make all of the littlest holidays so much fun! If you’re at a loss for how to celebrate upcoming Valentine’s Day with your little one, I have a few ideas!
Crafts are always fun. Kids love scissors, glue, paint, stickers, and sparkles, of course! Depending on the level of messiness, I mean independence, you can do anything from assisting your child with turning their hand or prints into heart-shaped Valentines to putting some of their favorite treats in goody bags with personalized labels. For example, ‘You are the apple of my eye’ or ‘Orange you glad we are friends?’ Valentine’s Day treats don’t always have to be candy!
If crafts aren’t your thing (you can find the cutest store-bought Valentines at Target, Michael’s, and Hobby Lobby these days), you can still celebrate Valentine’s Day by doing some fun activities around the house. One thing you can do is create a list of people (friends and family) and have your toddler say one thing they love about each person and then write it on the list. The answers are typically both heartwarming and hilarious.
Personalized gifts are my favorite because it gives you a memento to look back on as your children grow. Creating valentines with your child’s face and a little ode to their personality is always a great option. In South End Charlotte, there is a Confetti Hearts Wall mural created to enhance the beauty of Charlotte and to create more joy. Who doesn’t want to spread love, joy, and kindness during Valentine’s Day? You can head over and take a peek at some of my previous Valentine’s Day sessions! I’ll be sharing the ones from this year soon!
What are your favorite Valentine’s Day activities to do with toddlers?
Wade and Waylon | 26 Week Preemie Twins | NICU Portraits | Charlotte, North Carolina | Krista Gantt Photography
Wade and Waylon
26 Weeks 2 Days
1 pound 10 ounces & 1 pound 14 ounces
“We had been trying to get pregnant for 3 years and were about to start the IVF process, and then found out we were pregnant with identical twins! The pregnancy was going well with doctor appointments every two weeks to keep an eye on the babies. We decided to have the boys' baby shower at 26 weeks, so we would have time to get the nursery ready. Well, the boys decided they wanted to come see what they got at their shower...I went into labor 2 days later!
I really had no clue I was in labor but knew something was wrong. I went to the hospital and they confirmed I was in labor and immediately started meds to try to stop it. Well my water broke and I was taken in for c-section. My sweet redheaded baby boys were born at 2:01pm & 2:03pm. This was by far the scariest day of my life. Looking at them now at 11 weeks old (37 weeks gestation), they are perfect.
Still in the NICU but doing great!! I could not be more thankful or impressed with the nurses and doctors. I thank god every day and I'm looking forward to being able to take my boys home.”
Evan is ONE | Charlotte, North Carolina Photographer | Krista Gantt Photography
Just like that, our baby boy is one!
The progress over these last 12 months is amazing! Our sweet baby boy came into this world a little small for his gestational age, but he plumped up. He’s meeting all of his developmental milestones, talking, walking, and doing so many fun things. We are having fun with him and can’t wait to see what the rest of our time with him holds.
When I was trying to come up with ideas of monthly photos, I honestly had a lot of options in mind. Too many to choose from! I settled on these three because I liked the crib view, but I also wanted us to be a part of the photos too. You know, to show his size compared to ours. Some months we were a little behind, but looking at all of these together is just amazing! It also makes me a little sad to see how fast he’s growing.
Now, I need to come up with an idea of yearly photos that we can maintain but also show his growth. What have you done for annual photos of your baby? Share your ideas with me in the comments below!
Neutral Nursery Inspiration | Charlotte Newborn Photographer | Boy Nursery Ideas
I am excited to share Evan's nursery with you today, and can't wait to share him with you very soon! Today is my due date, so it seemed like the perfect day to finally reveal the nursery. I am waiting on a few book shelves, but it is mostly complete.
When I first started dreaming up this nursery, I knew it had to be white. Call me boring, but I love an all white room. The light bounces off the walls and instantly increases its size! I wasn't quite sure what direction I would go after choosing white walls, but I knew I wanted to stay away from the typical baby blues and keep it nice and neutral. I wanted to incorporate some greenery and plants, so I knew I would also be bringing in earthy colors to tie it all together. I wanted to stay away from a theme, but it turns out that smiling sloths, llamas, and pandas are pretty cute.
Overall, it's simple but it's neutral enough that our baby boy can grow into it over the next few years. The wall art can easily be changed and we can incorporate any colors we want since white is so easy to work with. It's also pretty gender neutral if you're looking for ideas for a baby girl nursery.
Let me know if you have any questions, and make sure to leave a comment and let me know what you think of our bright, airy boy nursery.
Rigdon's Story
This is a story I wanted to share for a while, but it never felt like the right time. Today is Rigdon's birthday, so what better way to kick of the blog for 2018 than sharing about this preemie and his super sweet family! You've probably already seen many of these images on an old post (Remembering Rigdon), but this time they are accompanied by his entire story from beginning to end.
Rigdon's mom was willing to write her version of Rigdon's life story, and even found writing about it therapeutic. I can't even begin to understand the emotions Liz and Alan went through over the past few years, especially now that I am expecting a son of my own. I am so happy she shared this with me months and months ago, and I am thrilled to share it with you today. If you have a preemie or have lost a child, make sure to comment with your experience, emotions, and encouragement for this family.
If you want a sneak peak into Liz and Alan's next chapter... check out Bennett's Birth. Although Rigdon can never be replaced, this family was recently blessed with another healthy baby boy!
Rigdon’s Story
"Though some days eternity can feel like forever, I know we will see and hold him again."
"Alan and I had always planned on having children. We never anticipated entering into the ‘infertility club,’ and we kept that part of our lives pretty private as we went through all sorts of procedures/testing, but that was our reality, and it was tough. I remember at one point tearfully praying that IF we were blessed with a child, I would do my best to never take them for granted, because I would know what a miracle he or she was—I had no idea how that prayer would be answered, but felt assured that child or no child, everything was going to be ok. I could never have imagined the miracles I was about to witness!
We had been trying to get pregnant for a couple of years, and had undergone three IVF attempts by the time Rigdon came into our world. He was decidedly our final attempt through IVF, and we could not believe when we got word that we were going to have a little one! In fact, I don’t think I actually let myself believe it for many many weeks.
When you go through failed fertility treatments, you learn the art of being ‘cautiously optimistic.’ I didn’t share the news until about 20 weeks into my pregnancy, when I finally felt like it was ‘really happening,’ and I allowed myself to just enjoy it. That was a little short lived. The pregnancy was full of its own drama, and I had two episodes of heavy bleeding where I thought “there is no way our baby made it through that!” Both times, I remember sitting in anticipation, paralyzed with concern, waiting for the ultrasound, and both times, weeping with joy when we heard that heartbeat and saw him wiggling around as if to say “I got this. I’m not going anywhere.” I knew from the beginning he was a strong soul. The strongest…
I had just gotten home from my shift in the ER on Jan 21, 2016, and was getting ready for bed, when my water broke. I was completely stunned. I had just started feeling better with the pregnancy symptoms, and had barely started to feel movement; I couldn’t really process what had happened and honestly, I had no idea how our world was about to change. I think I subconsciously, and rather naively, thought “we got this, things are fine, our little guy has shown us he’s strong before,” and off to the hospital we went.
The next few weeks of bedrest are kind of a blur. I had ruptured at 21 weeks and 6 days, and there were a lot of conversations about the lack of much needed amniotic fluid for his lung development in particular, as well as the risk for infection. I had a couple trips to L&D, but the contractions would calm down, and the 3 weeks we were able to keep him in were filled with hope for just one more day for him to grow. We had goals to reach! Our first goal was 24 weeks; we never got to the next one.
During that time, I started thinking back to many years ago, when I had been serving as a missionary, representing our church in the Caribbean. One day when I was struggling with feeling tired, lonely, and dejected, one of the leaders of the mission there said to me: “We can do hard things.” There was more, but that phrase has always stayed with me. And that became our motto. We were feeling tired, often lonely and often dejected, but our little family, our little boy; whatever he would face -- could do hard things.
3 weeks after my water broke, February 11th, Rigdon joined our world. He was a tiny 24 weeker, but was bigger than I thought he’d be. He weighed in at 1 pound 10 ounces and was just 12 inches long…but he looked so strong. The delivery was a bit traumatic, but I remember the seconds after I delivered him as being a moment where time stood still. The room was filled with people ready to act in our behalf, and as they held him there in front of me for a few seconds, despite the voices around me, I heard absolute silence. There was no cry. He couldn’t. I could just stare at that little boy for seconds before they whisked him away to intubate and stabilize him. I couldn’t see him, but I remember vividly the words the NICU team spoke as they surrounded him across the room. His heart rate was dropping,..they got him intubated..his heart rate improved.. The NICU doctor came to my bedside and tenderly placed his hand on mine and told me they would let me know when I could come see him and that they needed to take him then. I remember our exit from L&D without my babe in my arms. That was probably one of the first moments I truly realized the ‘loss’ we were experiencing, and would continue to experience time and again.
Our entrance to the NICU, was unlike our little tour beforehand, because now OUR little baby was in there. This was now our home. I remember seeing him in his little isolette, and wishing so badly that I could hold him; keep him safe, but also being terrified that I’d break such a tiny perfect thing if I touched him. Every experienced hand that worked with him seemed ‘too rough’ and I knew pretty quickly that this little boy now totally owned his momma. I was going to be there every minute possible to witness his life, support him, and protect him. I felt a growing weight of advocacy I had not understood before. We never wanted to leave! (Though I am sure many times the staff wished we would) We grew more and more obsessed with him everyday and if we wanted to be with him, then we had to be there in the NICU, so we were there in the NICU. We didn’t care to be anywhere else.
He is our miracle. He lived in that NICU for 7.5 months (230 days) and our sweet NICU family had become a quite literal family. They will forever be a part of us! They were there to witness every moment by our side. Every milestone was a miracle for us… The first time he opened his eyes, (His eyes were still fused shut when he was born; it was a literal miracle to watch them open in front of us), his attitude with always wanting to kick his feet out of his swaddle, the first feeding, the ridiculously long baths because I was so new and he was so tiny, when he finally weighed enough to wear clothes, moving to an open air crib, and of course, the way he loved to kangaroo. Those are such precious memories that are now shared with people who understand the significance of those miraculous moments in our lives. With as hard as it can be to have the hospital be your home, there are some joys unique to the experience, including having witnesses to every single accomplishment your baby achieves… all rejoicing with you because of how much they love him.
For every moment of pure joy, it seemed we had multiple moments of anguish. Like most parents, we held to the belief that if he could ‘just get through’ whatever had knocked him down this time, then we could get back to working towards healing and home. Every day was one more day of progress, but there were a lot of setbacks. There were nights we stayed by his isolette all night, for fear of missing our last moments with him. There was rejoicing in the morning when he had made it through the night. There was worsening eye disease until he finally required laser surgery. Then there was recovery. There was infection on top of infection and so many blood transfusions, medications, and drips… all within the first 3 or 4 months of his life. We worried that his body never seemed to have time to grow those lungs that were so very weak and underdeveloped. That became our focus of concern. He didn’t seem to be improving as expected.
Rigdon was growing, but his lungs were struggling. He had been tried on CPAP 3 times, and the final CPAP trial lasted 5 days. He was re-intubated on Easter Sunday at 6:45 pm. I remember clearly the moment he was reintubated, because I heard his tiny little lamb like cry as they removed CPAP to place the tube. I only heard his little voice for seconds, and then there was silence. I never heard that little cry again.
He couldn’t seem to get off the vent. Then came the tracheostomy. We had spent months hoping he would grow enough not to need a surgical airway. It scared us—not because we couldn’t care for it or him, but because of what it meant. We were so scared about his future, but knew that our miracle baby had fought hard to get to where he was, and we were going to keep supporting him. As long as he was fighting, we would fight right there with him. We chose faith over fear, and he got his trach and G-tube placed in June. There was about a week of recovery with paralytics, pain medicine, more drips, and, of course, infection. It unfortunately, was a setting we had become familiar with. Nothing came easy for our sweet boy, but if I could define strength, it would be him.
When he came back from surgery, I was mesmerized by his now fully visible face and spent hours staring at him in his crib. I could now see all his features without tape and tubing getting in the way. He was a perfect angel baby! I became instantly grateful for the trach because I felt I was experiencing an entirely new Rigdon! The weeks leading up to the decision were so hard; filled with heartache and a thousand questions—I had no idea I could feel like I was getting back somehow a more ‘complete’ baby, when I was so focused on what I felt was being taken away. The days and hours always felt long, but time was still passing. We watched many many babies come and go from our little part of the world. We went through cycles of sadness, anger, and hopefulness as we went through multiple ‘roommates,’ often feeling a little left behind. Our tiny little miracle boy had somewhere along the way turned hefty, which served as a reminder of our seeming lack of progress, but also, growing right along with him was the deepest, greatest love we could ever imagine. In being honest, we definitely went through moments of jealousy for others’ babies and the progress they were making, but also found great joy in learning that loving and rejoicing with others did not diminish our own situation or triumphs. And that was a big lesson to learn.
Through our extended time in the hospital, I would say my best advice is that we simply cannot compare! That’s the hardest part of having to go through this experience, I think. We want to know the end from the beginning; we want to know how it all turns out, and we find ourselves living for/in the future instead of in the miraculous moments right in front of us. It’s human nature to want to know what’s going to happen, so we try to find others that are ‘just like us’ and somehow use them as a mental guide. We try to compare our struggling child to others’ good outcomes to bring us comfort because “so-and- so went through this and they made it home—so we will, too.” It’s something even well-meaning friends do. “I knew someone that had a baby just like yours, and he/she is completely healthy and you would never know it!” Although, that may be the likely outcome and is meant to give hope, you just never know what is in store for you, and that takes its toll on the heart. Life becomes a constant struggle of balancing hope, realistic expectations, and the ever present gnawing sadness that accompanies watching your baby fight such a battle, and wishing you could do something more.
We had to learn that each and every baby is so individual; there are no comparisons. Nobody can tell you for certain what your outcome will be. You just go through it with faith and hopefulness and take things one day at a time, finding the miracles in everyday moments. We had to learn to “let Rigdon do Rigdon.” Learning not to compare helped us to be able to focus on our own little one and rejoice in His triumphs, regardless of what others were doing the next pod over. It also helped us to be able to reach out and form friendships with others because we no longer saw them as “comparables,” but as individuals with their own individual struggles, fears, and joys. Those friendships have meant so much because a natural byproduct is even more people to love our babies! Of course, there were hard days where we didn’t want to be the friendly veterans, we didn’t want to be in the NICU ‘club.’ Nobody does. We just wanted our turn to take a healthy baby home… But overall, I could never fully describe the love and sacredness of our time experienced within those walls. That was home for us.
Discharge day finally came! I cry every time I think about that day. Truly, there was no better day than the day we took him outside those hospital walls to come home. The amount of equipment required for him was daunting, but was completely overcome by our excitement and desire to watch him soar. He was as stable as possible, but not in a great place to be honest, and we really felt like if we could just get him home where he belonged, then he would begin to really thrive. We dreamt of our walks outside, getting him up from his crib in the next room, playing by our big window on the floor of our living room... we didn’t want to take a single moment for granted. We wanted him to experience being surrounded by the peace of being home, and we will cherish forever the time we did have to give him that.
Rigdon loved being home. We knew it. And We loved it even more! That’s why it was so heart wrenching to see him start to decline. He required more support and we had to experience many parents’ worst nightmare of having to resuscitate your own baby. We knew we had to go back. About 3 weeks after getting him home, we went back to the hospital, this time at LCH where his pulmonologist was, and we were there to stay.
We went to the PICU, and spent the next few months watching Rigdon continue to fight infections, and make small progresses only to be followed by large setbacks. He had been put back on the hospital ventilator and could not seem to tolerate a home vent again. We often said that we hated having to be there, but there was also no place we’d rather be. We were blessed, once again, with wonderful care-- such great love and dedication to our babe. We do not doubt for one second that he was cared for by the best throughout his life, and offered all there was to offer in his behalf. Still, it was hard being away from our NICU family, who knew him so well, and having to develop new relationships with the PICU staff. Turns out, it just added to our growing tribe… I remember it was so hard to try and explain how and why Rigdon had changed and was worrying us. They didn’t know him yet, but that didn’t take long to remedy. He stole their hearts pretty quickly and he had a brand new audience to swoon over his every smile, hand hold, and expression. We saw him laugh for the first time there! It actually scared us at first because the alarm on the vent would go off from the increased pressure, but when we realized he was laughing, I mean, you can’t describe the swelling that happens in your heart! He even had his first and only taste of baby food there (pears). We felt our little room at LCH had become a special place, made special by his sweet spirit, and people loved to come and spend time there with him. (That made it just a little easier, knowing he was being well loved for the times when I couldn’t be there.)
The holidays approached and we knew he was nowhere close to where he needed to be to return home. As had been the case many times before, we were told he was not progressing as expected. We weren’t sure why he wasn’t improving, but kept holding on to the hope that he could overcome his BPD with more time. That timeframe kept getting longer and harder for him. Christmas week was actually a really good week for him, and I think that was a blessing meant just for me. We had a beautiful family Christmas and even took our first family photo to include our surprise miracle baby #2! After being told this would likely never be a possibility for us, we just knew this was another miracle in our lives, and a purposeful blessing given to us for a reason.
Two days after Christmas, Rigdon started to really struggle, and by New Year’s Eve, he was in really bad shape. He had never been like this before. Things were different this time. He was placed on paralytics, the oscillator, multiple sedation and pain meds, and for the next couple of weeks, we watched for him to show us he could get through this once again. The months had been difficult, but he always seemed to have just enough strength to get through. He’d never quit fighting, but this time seemed to be too much for his body. We had been living in his room with him during those final weeks, and when he passed, we held him as tightly as we could physically hold him, as we watched our beautiful miracle baby boy slip away. We found out we were having another baby boy just days before Rigdon passed away.
There is no replacement for our perfect angel boy, and there is a constant throbbing and loneliness for him that I am having to learn to live with now in my heart, but I can say with certainty that his life was full of purpose and we wouldn’t trade a minute of our time with him. He has forever changed us (I hope for the better), and our family, and pretty much everyone that ever knew him. We didn’t get the outcome we hoped for, but the influence of his life continues to unfold in front of us daily. I can say we never took him for granted, as I prayed so long ago, and am so grateful for every long day and night with him… every memory still feels so raw, so fresh in my mind. There is no “moving on” when it comes to missing your baby. Only moving forward. And sometimes, like Rigdon, I feel I am doing that on a sliding backwards slope. BUT – there is meaningful purpose in his life and that helps as we find the joy of having learned to love so deeply and the blessing he is and forever will be to us. I hope to be able to help other moms feel some sense of comfort knowing that I know, with faith and through experience, that we really can do hard things, whatever the outcome, and it will be ok."
Charlie, An Angel | 26 Week Preemie | NICU Portraits | Charlotte, North Carolina NICU Photographer | Krista Gantt Photography
You may remember Charlie from a few photos floating around on my Instagram page. When we first met in the NICU last October, Charlie was just over 2 weeks old. He came into this world weighing right at 1 pound. You read that right. Charlie weighed 1 pound 0.02 ounces to be exact.
Although Charlie's life was short, he fought hard to be with his mom and dad. Here is Charlie's life in a nutshell, as told by his mom.
It all started on May 15, 2016. I wasn’t feeling so great and I knew I was late, so I decided to take a pregnancy test. Well it came back positive, and I decided to take 5 more tests just to make sure (I was very surprised). On June 6th we ventured to the doctor to hear Charlie’s heartbeat for the first time. My regular OB/GYN did some blood work and tested for Down’s syndrome but it came back fine. My numbers came back somewhat high for Spina Bifida, so I was referred to a Maternal Fetal Physician.
On August 2nd, Dr. Shaver confirmed we were having a little boy (quite the surprise for me). Charlie was quite active in the tummy and they found that he did not have Spina Bifida. However, the doctor did talk to us about the possibility of preeclampsia. I didn’t think that kind of thing would happen to me.
On September 16th (my birthday) I had a severe headache and could not function very well. By September 19th, I was being admitted to “Special Care” at Presbyterian Main to be monitored for preeclampsia. I was followed closely and Charlie’s heart rate would drop from time to time, which was a cause for concern. On October 3rd I had an ultrasound. Charlie’s heart rate dropped significantly while they were conducting the ultrasound, and that lead to me being sent to L&D for 24 hour monitoring. At 3:45am, I had to use the bathroom and when I returned, the nurse was unable to get Charlie’s heartbeat, even with the assistance of other nurses and a doctor.
At 5:30am my Maternal Fetal Physician made the decision for Charlie to be delivered by C-section because he would not have made it through the next 24 hours if they waited. It was at 6:33am when my story ends and Charlie’s begins...
Charlie was born weighing 1 pound 0.02 ounces and measured in at 10.25 inches long. The doctors prepared me telling me that since Charlie was born so early, he probably would not make any noises when he was born. I prayed and asked for a sign that he was ok. When Dr. White held him up for me to see, he screamed and cried. I cried at that moment because it was the most beautiful sound I had ever heard. I didn’t realize it would be the first and only time I would ever hear him cry.
Upon Charlie’s arrival, Chris met with Dr. Morales and Kayla (nurse) and they talked to him about Charlie. Kayla told Chris that he had nothing to worry about because she would be taking care of him that day. They wheeled me into the NICU from recovery and I was able to touch Charlie for the first time. I could not get over how little he was and that his eyes were still fused shut.
In the following days, we had a lot of ups and downs. The first big hurdle was on October 9th when Charlie was at 100% oxygen. I remember the neonatologist telling us that we didn’t have a lot of options at that point because his lungs were in such bad shape and he needed so much support. Chris and I just looked at each other and cried because we knew he was very premature. Everyone tells you about the roller coaster ride called the NICU.
It was on October 9th that we decided to have Charlie baptized. We wanted to be prepared if anything should happen. We celebrated each milestone as it came... whether it was weight gain, being able to tolerate feeds, skin to skin contact, or something as silly as my first experience with breastmilk poop.
It was not a surprise that Charlie had stolen Kayla’s heart when she first met him, so it was important to Chris and I to ask Kayla about being Charlie’s first primary nurse. As time went on we had Anna, Carmine, Rachel and Hannah all sign up to be primary nurses for him. We did have a few other nurses that had special relationships with us and Charlie but they already had primaries. These women all left a lasting impression on us. We will always see them as “Charlie’s angels.”
Charlie was a feisty little guy. I couldn’t help but laugh when the nurses would tuck him in and swaddle him and he would somehow break free, whether it was his little legs kicking or it was his arms. Out of nowhere, you would see his arm go up in the air like a defiant victory.
It might sound silly but I enjoyed changing his diapers, taking his temperature, wiping his face and just having those few minutes touching him and talking to him, so that he knew I was there. In the morning when I would arrive, I would sing songs to Charlie and talk to him about the great big world. At night time I would go back and read him a bedtime story. His favorite story was “On the night you were born.” I say this was his favorite because it seemed to be the one story that I read to him when he would open his eyes and look around.
My most treasured memories were either when Charlie would grab my finger and hold it, or when we had our skin to skin time and I could just sit there and snuggle with him.
I received a call from the Pediatric Surgeon on 11/26/16 and he informed me that they needed to do exploratory surgery bc they thought Charlie might have Necrotizing Enterocolitis. I would not give verbal consent. I wanted to see Charlie before they did the surgery and I made it to the hospital in time. I got to hold him with the assistance of a Respiratory Therapist until they got his bed set up. They told us he had a 50/50 shot of making it through the surgery, and I remember thinking and feeling like this was all of my fault becasuse of the preeclampsia. I felt like my body failed Charlie and put him through more pain than I went through.
Charlie made it through the surgery and did great. We stayed overnight at the hospital just to be on the safe side. I woke up at 1:45am because I wanted to be at his bedside for his 2am assessment. I received a text at 1:50am from Charlie’s nurse telling me that we needed to get to his bedside. I woke Chris and we went running. As we turned the corner we were not prepared for what we were about to see.
A nurse was giving Charlie chest compressions. His primary nurse had just given him a dose of epinephrine because his heart rate dropped and it was not coming back up. Once they were able to get him stabilized, Chris and I made phone calls and some of our family members came to the hospital. Charlie’s nurses all showed up. Charlie really knew how to draw a crowd and get the emotions going.
Around 9pm Monday night, we started to realize that things were not going as well as they were earlier in the day. Charlie was on 3 different blood pressure medications to bring it up, but nothing seemed to be helping. He just looked so tired. It was at that time that I looked at Chris and I told him that Charlie is getting tired and that we needed to make a decision. He looked at me and shook his head yes. Dr. Morales was getting ready to approach us and tell us about the terrible blood gas that he just had, but I stopped her and said that we knew he was tired. We wanted them to go ahead and unhook Charlie from everything and place him in my arms, and that is how he would leave this world.
Our families and nurses were there and said their goodbyes. We then asked our families to leave and we only wanted Charlie’s nurses, our Deacon and Dr. Morales there. The nurses dressed Charlie and laid him in my arms and Chris sat next to me. I sang to him and told him that we would never be angry for him not wanting to fight anymore. After about 5 minutes, Dr. Morales came over and listened to his heart and looked at us and said that he was no longer with us as of 1:24am.
Dr. Morales and Kayla were there when Charlie came into this world and they were there when he left and that meant so much to us because we had such a wonderful relationship with them. When they removed the ventilator tube, I felt so heartbroken but when I looked at my sweet boy, he had this beautiful smile on his face. It was like he was happy and at peace and I felt like maybe my dad was there to greet him in Heaven.
“Dearest Charlie,
You came into this world on October 4th and changed our lives forever. It seems like only yesterday that we had heard the most beautiful sound upon our ears when you cried. It gave us the greatest comfort knowing that you would be our little fighter, our superhero. We had no idea at that moment that we would gain not only a beautiful little boy in our lives but also a family we didn’t know we would be blessed with. Eight weeks may not seem like a long enough period of time to change people’s lives but you certainly did sweet boy.
Your personality was enormous for such a little peanut. It was not unusual for you to go from swatting your little hands at your nurses and sometimes even mommy to grabbing the finger of those giving you the loving care you received. It was comical to watch your nurses work so hard to bundle you up, only for you to sneak your little arm or leg out and shake them in defiant victory. As if your personality wasn’t enough you were blessed with golden blonde hair and big blue eyes and it is plain to see how you captivated the hearts of all who met you. Speaking of those captivated hearts, as you know they are here with us celebrating you. You may not recognize them without their scrubs on, but we know you recognize them by their love and devotion to taking care of you. Whether it was comforting us when you were having a rough day or celebrating milestones with us, their resolve never wavered.
We could fill volumes of books with the hopes and dreams we had for you. In spite of all of those things we wanted our perfect little boy to be a good person. You exceeded our hopes and dreams in these 8 weeks we were blessed with. You taught us more about unconditional love and compassion than we could have imagined. You made a difference in a way that most people can only dream.
We love you very much, sweet boy, and miss you terribly. There is not a minute we don’t miss you. We can only take comfort in your being set free from the pain and struggle you fought so hard through. You overcame many obstacles in your time on this earth, with great perseverance. There isn’t anything we wouldn’t give to see your beautiful blue eyes looking at us, or feel you squeezing our fingers and not letting us pull away from you.
Watch over all of those gathered here and those who were blessed with your presence. We all have an extra guardian angel now to watch over us. You are loved and missed so much Charlie, and you always will be.
Love always,
Mom and dad”
You Are Not Alone
I want other moms to know that they are not alone and that this is a unique club that no one ever wants to be in. I never in a million years thought that I would be cremating my 7 week old son. I still to this day struggle with the feeling of my body failing Charlie and causing him more harm and pain on the outside. There are triggers everywhere and somedays I can walk around the mall or a store and be ok and other days I can walk in and walk right back out because of my anxieties and triggers. I have a few friends who have suffered miscarriages which is still the loss of a child but they cannot fully relate to what I struggle with because we had Charlie for 7 weeks and had a different experience.
Chris and I started attending Kindermourn for grief counseling which has been great. I started going to a support group last week called “Empty Arms,” which specializes in miscarriages, stillborns and infant loss. The first meeting was definitely eye opening for me. I didn’t expect to be in a group with 4 other couples and myself (Chris does not want to participate in the group) discussing the loss of our children and talking about the trauma that we suffered.
One thing that I have learned is that men and women definitely grieve differently. That is something to be prepared for. Do not let people tell you that whatever you need to do to help you grieve is wrong. There is no handbook on grieving or how to cope with the loss of a child and everyone grieves in different ways. One other thing I wanted to mention is that it is ok to need medicine to help with depression or anxiety. It does not have to be a permanent thing but it can help especially when you are going through so many emotions and it can be very hard to handle.
Update on Jack | 23 Week Preemie | NICU Portraits | Charlotte, North Carolina NICU Photographer | Krista Gantt Photography
Jack's mom sent me an update on his progress! If you missed him on the blog, click below to see what he looked like shortly after he was born at 23 weeks. Then read below to see what his mom had to say about his progress.
“Jack is doing well! He has been up and down on his feedings. He gets very close to full feedings and then his gut needs a break so we start back very low. He does show cues of hunger and rooting and LOVES taking a bottle. He is 2200 grams now! We are working towards him being in a crib, but don’t want to overload him with a ton of work to do on his own. He is down to low flow cannula on .0125 Os. He is not quiet ready to be off oxygen, although he pulls the cannula out constantly so we resort to taping it to his nose.”
Jack | 23 Week Preemie | NICU Portraits | Charlotte, North Carolina NICU Photographer | Krista Gantt Photography
“Jack was expected to be born in April 2017, he had other ideas. We were working and living on job assignment in Indiana and drove to Charlotte for a few days to spend time with family for the holidays. The night after we got here, Jack arrived as well. From the point of water breaking, it took 12 minutes until Mini Man graced us with his presence. It has been such a huge roller coaster since we got here. A lot of one step forwards and two steps back.”
These photos were taken a while back, but Jack is definitely making progress. Click here to see how Jack is doing!
Asher | 25 Week Preemie | NICU Portraits | Charlotte, North Carolina NICU Photographer | Krista Gantt Photography
“We chose the name Asher because of it’s beautiful meaning: happy, blessed, and fortunate...which is exactly how we feel today!”
Asher was born at 25 weeks and 6 days at just 2 pound 6.9 ounces. When we met, he was over 2 months old, and looking oh so healthy! He was working on learning how to take bottles and was able to go home to be with his parents and big brother, Jackson, in February right after his due date.
Kerri and Nate's story wasn't easy though. Jackson was conceived by IVF (in vitro fertilization) after a few years of infertility treatments and several rounds of IVF. Asher was conceived using a frozen embryo - Isn't that amazing!? Our medical advances are absolutely astonishing sometimes!
All went well during Asher's time inside the womb, until Kerri was diagnosed with preeclampsia. It eventually progressed and became so severe that Asher had to be delivered via emergency c-section. He was born on November 4th and experienced a few hiccups along the way that complicated his stay in the NICU. Today is he is looking stronger and stronger!
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